My Profile

Emily

Gender: Female

Location: Long Island, NY

Quote: "You must be the change you wish to see in the world"--Gandhi

Relationship: Divorced

Children: Don't Know

Body Type: Slim / Slender

Religion: Christian - other

Ethnicity: White / Caucasian

About Me: I was just dx/Para on 12/28/07. I have quite a few rare medical conditions including Chiari Malformation 1,(2 brain surgeries for this) EDS 111,POTS, SM,TC.... Plus other "fun" things!! Used to sing professionaly b4 I got sick. Looking forward to meeting and talking with everyone!! I love making new friends and I LOVE to laugh!!

Music: WAY too many artists to type here! Suffice it to say a little bit of most types!

Movies: Comedies, romances, and action films!! Casablanca, French Kiss, Independence Day, Hitch, Casino Royale...

TV: Y&R. Two and a Half men, Sex in the City, Desperate Housewives, HOUSE. Medical Mysteries, MASH...

Books: Romances, true stories

Likes: Sunsets, taking photos "shiney things",the beach, dining "alfresco". My friends!! Funny people...

Dislikes: Bad attitudes and tempers! People who use the handicap parking w/o the placard!!

Hobbies: Reading, writing, scrapbooking, photography, computer,singing, learning about the ADA, disablity rights.

Vices: Liers, enough said!!

Virtues: I believe in being honest,having integrity, kindness and having compassion for others.

Heroes: My Dad, Alan who died of brain cancer 6 years ago. My cousins, Chiari friends, esp. my "best bud" Amy.

My Blog

wheelchair questions...

Sunday, March 2, 2008, 12:19 AM EST [General]

Hi,all. Hope you're doing ok...

I'm trying to purchase my first manual chair. It's been quite a production and I was wondering if anyone had any tips or want to tell me the chairs that they use. I'm looking into the "ti Light" series. Anyone use them? Any suggestions for a "newbie" user? I've been using a scooter as I'm sure some of u know, is very difficult to get into cars. So I'm looking into a light manual. I appreciate any responses!!! THANKS!! Emily

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Hi, I'm a "newbie".

Tuesday, February 26, 2008, 11:58 PM EST [General]

Hi, Everyone!! My name's Emily and I'm 35. I was recently dx/as a Para on 12/28/07 due to ilnesses. I'm SO looking forwrd to meeting and making many new friends here! I already mentioned some of the conditions that I have on my page itself, so please feel free to read through it. Take care and I'm looking forward to speaking with everyone.