Emily

    Gender: Female
    Location: Long Island, NY
    Relationship: Divorced
    Children: Don't Know
    Body Type: Slim / Slender
    Religion: Christian - other
    Ethnicity: White / Caucasian
    About Me: I was just dx/Para on 12/28/07. I have quite a few rare medical conditions including Chiari Malformation 1,(2 brain surgeries for this) EDS 111,POTS, SM,TC.... Plus other "fun" things!! Used to sing professionaly b4 I got sick. Looking forward to meeting and talking with everyone!! I love making new friends and I LOVE to laugh!!
    Music: WAY too many artists to type here! Suffice it to say a little bit of most types!
    Movies: Comedies, romances, and action films!! Casablanca, French Kiss, Independence Day, Hitch, Casino Royale...
    TV: Y&R. Two and a Half men, Sex in the City, Desperate Housewives, HOUSE. Medical Mysteries, MASH...
    Books: Romances, true stories
    Likes: Sunsets, taking photos "shiney things",the beach, dining "alfresco". My friends!! Funny people...
    Dislikes: Bad attitudes and tempers! People who use the handicap parking w/o the placard!!
    Hobbies: Reading, writing, scrapbooking, photography, computer,singing, learning about the ADA, disablity rights.
    Vices: Liers, enough said!!
    Virtues: I believe in being honest,having integrity, kindness and having compassion for others.
    Heroes: My Dad, Alan who died of brain cancer 6 years ago. My cousins, Chiari friends, esp. my "best bud" Amy.

    wheelchair questions...

    Sunday, March 2, 2008, 12:19 AM EST [General]

    Hi,all.  Hope you're doing ok...

     

    I'm trying to purchase my first manual chair.  It's been quite a production and I was wondering if anyone had any tips or want to tell me the chairs that they use.   I'm looking into the "ti Light" series.  Anyone use them?  Any suggestions for a "newbie" user?  I've been using a scooter as I'm sure some of u know, is very difficult to get into cars.  So I'm looking into a light manual.  I appreciate any responses!!!   THANKS!!  Emily

    0 (0 Ratings)

    Hi, I'm a "newbie".

    Tuesday, February 26, 2008, 11:58 PM EST [General]

    Hi, Everyone!!  My name's Emily and I'm 35.  I was recently dx/as a Para on 12/28/07 due to ilnesses.  I'm SO looking forwrd to meeting and making many new friends here!  I already mentioned some of the conditions that I have on my page itself, so please feel free to read through it.   Take care and I'm looking forward to speaking with everyone.
    0 (0 Ratings)

Blog Pages

My Groups


    Leave a Comment | View All Comments

    Thanks Em. I really was being very self indulgent however I did need to get it out of my system. Your comments were gratefully received. Thank you. I am back on form now but still feel a bit delicate. Daft how a simple comment can make you feel so useless. I find those people who say is it just a temporary thing this chair or ask when I will be better just so irritating but I try to keep a lid on that. I get asked a lot what is the matter with my leg as I wear a calliper. It is hard to explain that it isn't my leg that is the problem as most people don't really understand how their bodies work anyway. So sometimes I make up a ridiculous (for me) answer like a Skydiving accident parachute did not open and I fell from 30,000 feet to the ground, and the strange thing is that they often believe me!!

    I think I will have to change that one though and think of a more outrageous answer, one which makes them embarrassed, perhaps falling through a roof whilst escaping from the police following a security van heist! Yeh I like that one and I think I will use it.

    Keep smiling through the cr@p!!
    Love Fifi

    Fifi
    May 17, 2008
    08:29 AM EST

    Hello Emily,

    Yes I am Phisically Disabled. Sorry for your confusion.

    Thanks for visiting AbleURL.

    Saurabh

    AbleURL
    May 16, 2008
    10:56 AM EST

    Hi thanks for the message. Got a busy weekend but hope to write a proper blog next week :)

    sharon
    May 10, 2008
    07:42 AM EST

    Em

    no that is the right address, send me your myspace address and I can invite you from mine.

    GP

    Gary
    May 02, 2008
    08:14 AM EST
  • Grant, 37
    Grant

  • patricia, 50
    patricia

  • sharon, 33
    sharon

  • Larry, 44
    Larry

  • Mark, 32
    Mark

  • Fifi, 53
    Fifi

  • Marta, 42
    Marta

  • Mark, 36
    Mark

  • Janet, 37
    Janet

  • Gary, 47
    Gary

  • Simon, 40
    Simon

  • sophe, 28
    sophe

User Stats

    Loading...

Popular Topics

Calendar

     
    There are no upcoming events for this calendar.