Emily

    Gender: Female
    Location: Long Island, NY
    Relationship: Divorced
    Children: Don't Know
    Body Type: Slim / Slender
    Religion: Christian - other
    Ethnicity: White / Caucasian
    About Me: I was just dx/Para on 12/28/07. I have quite a few rare medical conditions including Chiari Malformation 1,(2 brain surgeries for this) EDS 111,POTS, SM,TC.... Plus other "fun" things!! Used to sing professionaly b4 I got sick. Looking forward to meeting and talking with everyone!! I love making new friends and I LOVE to laugh!!
    Music: WAY too many artists to type here! Suffice it to say a little bit of most types!
    Movies: Comedies, romances, and action films!! Casablanca, French Kiss, Independence Day, Hitch, Casino Royale...
    TV: Y&R. Two and a Half men, Sex in the City, Desperate Housewives, HOUSE. Medical Mysteries, MASH...
    Books: Romances, true stories
    Likes: Sunsets, taking photos "shiney things",the beach, dining "alfresco". My friends!! Funny people...
    Dislikes: Bad attitudes and tempers! People who use the handicap parking w/o the placard!!
    Hobbies: Reading, writing, scrapbooking, photography, computer,singing, learning about the ADA, disablity rights.
    Vices: Liers, enough said!!
    Virtues: I believe in being honest,having integrity, kindness and having compassion for others.
    Heroes: My Dad, Alan who died of brain cancer 6 years ago. My cousins, Chiari friends, esp. my "best bud" Amy.

    wheelchair questions...

    Sunday, March 2, 2008, 12:19 AM EST [General]

    Hi,all.  Hope you're doing ok...

     

    I'm trying to purchase my first manual chair.  It's been quite a production and I was wondering if anyone had any tips or want to tell me the chairs that they use.   I'm looking into the "ti Light" series.  Anyone use them?  Any suggestions for a "newbie" user?  I've been using a scooter as I'm sure some of u know, is very difficult to get into cars.  So I'm looking into a light manual.  I appreciate any responses!!!   THANKS!!  Emily

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    Hi, I'm a "newbie".

    Tuesday, February 26, 2008, 11:58 PM EST [General]

    Hi, Everyone!!  My name's Emily and I'm 35.  I was recently dx/as a Para on 12/28/07 due to ilnesses.  I'm SO looking forwrd to meeting and making many new friends here!  I already mentioned some of the conditions that I have on my page itself, so please feel free to read through it.   Take care and I'm looking forward to speaking with everyone.
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